Apr 7, 2018 | Body, Children
I thought it would be an interesting exercise to spend a couple of days really tuning into my body and document every physical sensation, and some of the accompanying thoughts, to develop total awareness of my natural coping strategies dealing with my EDS symptoms. It...
Dec 1, 2017 | Body, Community
My sister has the same genetic condition as me and my children (Ehlers-Danlos Syndrome). She strives hard to live a normal life as much as possible and has such a strong spirit! She has worked so hard over the years to make the best of what cards she was dealt with,...
Dec 11, 2014 | Body, Mind, Spirit
A couple of days ago, my two sons and I went to see a genetic specialist, who confirmed a diagnosis of Ehlers-Danlos Syndrome. To quote EDS UK, this is “… a genetic connective tissue condition that is a multi-systemic syndrome. Connective tissue covers...
