


The Very Messy, Poo-Filled Day…!
Imagine this. Tonight, whilst you’re trying to cook a dinner for your family, whilst also suffering an awful migraine on top of the usual dysautonomia symptoms, the 2 year old does the most mahoosive poo you have ever set eyes on – an impressive mixture of...
I am 2. I am not terrible…
“I am 2. I am not terrible…I am frustrated. I am nervous, stressed out, overwhelmed, and confused. I need a hug.” From the diary of a 2-year-old: Today I woke up and wanted to get dressed by myself but was told; “No, we don’t have time, let me do it.” This made me...
A (Couple of) Days in the Life of a Parent with Ehlers-Danlos Syndrome
I thought it would be an interesting exercise to spend a couple of days really tuning into my body and document every physical sensation, and some of the accompanying thoughts, to develop total awareness of my natural coping strategies dealing with my EDS symptoms. It...